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Polymyalgia Rheumatica


What is polymyalgia rheumatica?
How common is polymyalgia rheumatica?
What are the warning signs of polymyalgia rheumatica?
What causes polymyalgia rheumatica?
What can you do about polymyalgia rheumatica?
Outcomes
Additional Tips for Living Well

What is polymyalgia rheumatica?  

Polymyalgia rheumatica is a syndrome characterized by severe pain and stiffness in the muscles of the neck, shoulder girdles, low back, hips and thighs. There is no corresponding weakness of the muscles.

It is thought that polymyalgia rheumatica is a result of blood vessels becoming inflamed.

The name polymyalgia rheumatica actually comes from Greek words. In Greek, 'poly' means 'many,' 'my' means 'muscle,' and 'algia' means 'pain' (many muscle pain) and 'rheumatica' refers to 'muscle and soft tissue.'

A condition associated with polymyalgia rheumatica is called giant cell arteritis. It sometimes occurs in people who have polymyalgia rheumatica. It causes the arteries on the upper front side of the head, called the temporal arteries, to narrow. The arteries can become blocked and this can result in loss of vision.


How common is polymyalgia rheumatica?  

Polymyalgia rheumatica predominantly affects Caucasian women over the age of 50. Giant cell arteritis affects both men and women, usually over 50 years of age, who may or may not have polymyalgia rheumatica.


What are the warning signs of polymyalgia rheumatica?  

The warning signs of polymyalgia rheumatica include:

  • Severe pain and stiffness in the neck, shoulders, lower back, hips or thighs
  • Low energy and fatigue.
  • Profuse sweating during sleep. This is called night sweats.
  • Loss of appetite.
  • Slight fever.
  • Anaemia (pronounced a-nee-mee-a). This is a condition of the blood that can cause a person to look pale, and feel weak, sleepy and dizzy.
  • Depression.

The warning signs of giant cell arteritis:
If you have polymyalgia rheumatica you will probably experience muscle pain and stiffness in specific parts of your body, usually the neck, shoulder, lower back, hips and/or thighs. However, there are a variety of other symptoms that may indicate the presence of polymyalgia rheumatica.

With giant cell arteritis, the whole upper front side of the head will become extremely tender. The larger arteries on the side of the skull redden, swell, and are painful when pressed.  Other symptoms include changes in vision such as blurring, blind spots, or seeing double; pain in jaw, especially while chewing; dizziness; hearing problems and sore throat or cough.

The danger of giant cell arteritis is that it can cause blindness. Therefore, if you have already been diagnosed with polymyalgia rheumatica and develop any of the giant cell arteritis, contact your doctor immediately.


What causes polymyalgia rheumatica?  

No one knows what causes polymyalgia rheumatica. Genetic factors may play a part, and so the disease might be hereditary.


What can you do about polymyalgia rheumatica?  

To be able to diagnose whether you have polymyalgia rheumatica, your doctor will perform a physical examination and probably order laboratory tests. One test, called a biopsy, involves cutting away a very small segment of muscle tissue for analysis. If you have polymyalgia rheumatica you will have an elevated erythrocyte sedimentation rate (ESR). This means that you have a higher level of red blood cells that are settling in the muscle. Your doctor may also perform a test called an EMG. With this test electrodes are taped to your skin and the electric currents running through your muscles are recorded. 
 
To test for giant cell arteritis, your doctor may perform a biopsy of a very small amount of tissue from the inflamed area. If you have giant cell arteritis the tissue will contain cells that are larger than normal and that have multiple nuclei (or centres). These are called 'giant' cells.

Giant cell arteritis also goes away on its own over a period of years. However, treatment is essential to minimize the chances of blindness.

Your active involvement in developing your prescribed treatment plan is essential.

Medicine

NSAIDs reduce pain when taken at a low dose, and relieve inflammation when taken at a higher dose. NSAIDs such as ASA (Aspirin, Anacin, etc.) and ibuprofen (Motrin IB, Advil, etc.) can be purchased without a prescription. Examples of NSAIDs that require a prescription include Naprosyn, Relafen, Indocid, Voltaren, Feldene, and Clinoril. The various NSAIDs and Aspirin®, if taken in full doses, usually have the same levels of anti-inflammatory effect. However, different individuals may experience greater relief from one medication than another. Taking more than one NSAID at a time increases the possibility of side effects, particularly stomach problems such as heartburn, ulcers and bleeding. People taking these medications should consider taking something to protect the stomach, such as misoprostol (Cytotec).

Cortisone is a steroid that reduces inflammation and swelling. It is a hormone naturally produced by the body. Corticosteroids are man-made drugs that closely resemble cortisone.  The most common form of corticosteroid is called prednisone, taken in pill form. Prednisone use needs to be carefully monitored because of its many side effects, and the drug must never be stopped abruptly. Some of the side effects from long-term use include cataracts, high blood pressure, sleep problems, muscle loss, bruising, thinning of the bones (osteoporosis), weight gain and increased risk of infections. For treatment of polymyalgia rheumatica the dose is rapidly decreased to the lowest doses possible. These doses may need to be maintained for some time: anywhere from 18 months to three years. The goal with this and most drugs is to find the lowest effective dose that will avoid as many of the side effects as possible.  

Exercise

Muscles and the other tissues that hold joints together weaken when they aren't moved enough, so the joint loses its shape and function. Exercise may help reduce the pain of polymyalgia and can help you feel better overall. Moderate stretching exercises will help relieve pain and keep the muscles and tendons more flexible and strong. Low-impact exercises like swimming, walking, water aerobics and stationary bicycling can all reduce pain while maintaining strength and flexibility. Always consult a doctor before beginning an exercise program.

Heat/Cold

Heat helps to reduce pain and stiffness by relaxing aching muscles and increasing circulation to the area. There is some concern that heat may worsen the symptoms in an already inflamed joint. Cold helps numb the area by constricting the blood vessels and blocking nerve impulses in the joint. Applying ice or cold packs appears to decrease inflammation and therefore is the method of choice when joints are inflamed.  

Protect Your Muscles and Joints

Protecting your muscles and joints means using them in ways that avoid excess stress. Benefits include less pain and greater ease in doing tasks. Three main techniques to protect your muscles and joints are:

Pacing, by alternating heavy or repeated tasks with easier tasks or breaks, reduces the stress on painful joints and allows weakened muscles to rest.

Positioning muscles and joints wisely helps you use them in ways that avoid extra stress. Use larger, stronger joints to carry loads. For example, use a shoulder bag instead of a hand-held one. Also, avoid keeping the same position for a long period of time.

Using helpful devices, such as canes, luggage carts, grocery carts and reaching aids, can help make daily tasks easier. Using grab bars and shower seats in the bathroom can help you to conserve energy and avoid falls.

By maintaining a healthy weight you also reduce stress on your joints and muscles. If you plan to lose weight, discuss the best program for you with your doctor and a dietitian.

Relaxation

Developing good relaxation and coping skills can give you a greater feeling of control over your arthritis and a more positive outlook.


Outcomes  

Polymyalgia rheumatica usually goes away of its own accord, but it is impossible to predict how long the disease will last in any person. Once the pain and stiffness of polymyalgia rheumatica lessen, all patients are encouraged to resume their normal activities, trying to strike a balance between too much activity (which can strain painful muscles), and too little activity (which can increase pain and stiffness) and lead to further weakness.

Giant cell arteritis appears to run its course over a three to five year period with severe pain gradually disappearing. There is also the possibility of loss of vision. However, with treatment, pain subsides and vision loss is rare. The symptoms may recur months or even years after the first episode.


Additional Tips for Living Well  

Along with the physical symptoms of arthritis, many people experience feelings of helplessness and depression. Learning daily living strategies to manage your arthritis gives you a greater feeling of control and a more positive outlook. To get the best results, people affected by arthritis need to form close ties with their doctors and therapists, and become full partners in their treatment. From our perspective, it's all part of 'living well with arthritis.' There are several resources you can use in finding out how best to manage your own arthritis. Here are a few:

  • The Arthritis Self-Management Program (ASMP) is a unique self-help program offered by The Arthritis Society to help you better control and manage your arthritis.
  • The Open Forum within this Web site is an opportunity to discuss and share information with other visitors - people who, through their own experiences, may be able to offer some useful insights.

Of course, there are many other valuable resources for people with arthritis. If you're unclear about where to look for help, be sure to call The Arthritis Society at 1-800-321-1433.



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This page was last reviewed/updated on : 01/27/2009