Arthritis Matters - September 2018

National Highlights

 

Become an empowered patient this September during Arthritis Awareness Month

This year, as we celebrate our 70th anniversary, the Arthritis Society will be focusing on empowering people with arthritis through education about disease self-management. Arthritis is a serious disease, although is not always considered to be life-altering by those who do not have it. Throughout the month, we will be unveiling several new resources, including arthritis quizzes, brochures, and revamped online symptom checker, all designed to help Canadians learn about arthritis as a part of their patient journey. A self-advocacy guide will also be released later in the month to help people with arthritis learn how to be their own arthritis champion when speaking with their doctor.

“Self-advocacy is an important part of the patient journey,” says Janet Yale, president and CEO of the Arthritis Society. “We want people to be aware that they may have arthritis and they don’t even know it yet. Our innovative tools have been designed to help Canadians understand this disease and what they can do to help themselves before and after a visit with their doctor.”

Stay up to date on all our Arthritis Awareness events during the month of September, be sure to follow us on Twitter and Instagram, like us on Facebook, and visit our website.

 

 

Massage Addict returns for 3rd year of Hands on for Arthritis – Sept 22 & 23

Massage Addict massage therapy clinics nation-wide will be raising money for the Arthritis Society this September. On Saturday, September 22 and Sunday, September 23, Massage Addict will donate $5 from every massage treatment to the Arthritis Society, in recognition of Arthritis Awareness Month.

Massage therapy uses soft tissue manipulation to improve circulation and help release muscle tension. This, in turn, provides better flexibility and relief of pain that makes massage therapy an option worth exploring for many people living with arthritis.

Massage Addict offers several types of massage therapy, including Swedish, deep tissue, hot stone and trigger point therapy. To book an appointment, contact one of Massage Addict’s over 70 locations in Canada.

 

 

Arthritis Society and pt Health Partnership: Decreasing Pain and Improving the Quality of Life for Canadians living with Arthritis

The Arthritis Society and pt Health, a community clinic network with more than 230 locations across Canada, are proud to announce they have formalized a partnership focused on the benefit of physiotherapy to Canadians living with or at risk of developing arthritis. Specifically, the partnership will concentrate on increasing arthritis awareness, early detection and prevention, as well as the benefits of adding a Physiotherapist with increased arthritis knowledge to a patient’s treatment team. The goal of the program is to help patients living with arthritis realize the potential benefits of a drug-free treatment plan that may offer relief from chronic pain and discomfort as well as an improved quality of life.

“We know that more than six million Canadians live with arthritis and that the demand for real relief is only increasing,” says Heather Shantora, CEO, pt Health. “Physiotherapy has the potential to help reduce symptoms and help arthritis patients regain their quality of life. Together with the Arthritis Society, we are applying the best of what we know about arthritis to help offer patients an alternative to the pain they live with.”

This partnership is designed to help educate patients and caregivers about the condition. “It’s time to change our mindset about arthritis,” says Janet Yale, president and CEO of the Arthritis Society. “It is no longer necessary for someone to simply accept living with pain when they receive a diagnosis of arthritis.”

As part of the program, pt Health physiotherapists will develop individualized programs, customized for each patient’s unique needs, to help decrease inflammation, strengthen the muscles around the joint, increase range of motion, and reduce pain.

To learn more, visit www.pthealth.ca.


 

 

British Columbia

That’s a Wrap!

That's a Wrap!Thirty excited kids from across BC came to Camp and helped make our 36th year of this very special educational retreat one of the best yet! With the fantastic weather and the positive attitudes and energy of all involved, campers got to try out new activities and experiences, while making memories with new friends.

Former campers and friendly faces returned as counsellors this year, and were paired with kids having similar diagnoses to encourage conversations and ensure peer support. As always, there was a wide range of activities for everyone to try, including a private climbing wall brought in to Camp Capilano, a field trip to the Britannia Mining Museum where the kids got to see the underground tunnels and pan for gold, and a picnic at the beach with kites sailing high!

There is always a lot of energy in the room for the annual Jeopardy match, and old school games like Password is a favourite, with the campers teaming up to play with their rheumatologists for a twist. This follows the “dinner with the docs”, giving the kids a chance to hang out with their doctor in a totally different and light-hearted dynamic. Not to mention competitive! And the doctors had a great time too, letting their rheumatology Fellows take the hot-seat during the most intense rounds of Password!

Camp is the result of the fantastic collaboration between the Arthritis Society and the pediatric rheumatology team from BC Children’s Hospital - we are so grateful! And most importantly, we had many new campers attend who made friends with others just like them, and had the opportunity to try new things, grow their confidence and increase their knowledge. Thanks for another great year!


 

 

Alberta

Pain: Relief Is Within Reach

Lorimer Moseley, PhD, of the University of South Australia This November, the Arthritis Society Prairie Region will present another event in our popular webinar forum series, entitled “Pain: Relief Is Within Reach”.

The event, which will be held on Saturday, November 3, 2018, will be broadcast live online from locations in Winnipeg, Saskatoon, and Edmonton. Join us in person at one of our host sites or watch on your own personal device from the comfort of home.

Participants will learn from our panel of health care experts about what pain is, what treatment options are available, and what each patient needs to know to make informed decisions about their own pain management.

A Q&A will follow each speaker and participants will have the opportunity to network with others living with arthritis. Lunch will also be provided to those that attend in person.

This program is offered free of charge, but pre-registration is required, as space is limited. Registration closes on October 31. Click on the registration link below to learn more and register.

Register Now 

This event is made possible by the generous support of our sponsors: AbbVie, Novartis, Pfizer, and Celgene.

 

 

Easing the Pain of Kids’ Arthritis

Easing the pain of kids' arthritisThis summer, 59 eager campers from Alberta, eastern British Columbia, and western Saskatchewan attended the Arthritis Society’s 2nd annual summer camp for children with arthritis, July 9 to 13.

Now officially called Camp All in This Together, a name chosen by campers last summer, this five-day adventure for kids aged 8 to 17 with a confirmed diagnosis of Childhood Arthritis was again held at Camp Kindle. Medically supervised and located in the fresh air of the Alberta Foothills northwest of Calgary, it was the perfect setting for kids with arthritis to meet new friends and to share their stories. Our first camp was highly successful, and 28 campers returned this year for another week of fun and friendship.

Activities included a basketball game led by Geoff Sage, the youngest person in Canada to have hip replacement surgery, and yoga led by Chloe Dusser. Guest speakers Megan Langille and Kristine Erickson spent time with campers, led activities and shared their own personal experiences about living with Juvenile Arthritis.

Camp Kindle, owned and operated by the Kids Cancer Care Foundation of Alberta, has modern dorms, a large dining room and gymnasium plus a swimming pool, a ropes course, zipline, and plenty of wide open space for kids with arthritis to just be kids.


 

 

Saskatchewan

Pain: Relief Is Within Reach

Lorimer Moseley, PhD, of the University of South AustraliaThis November, the Arthritis Society Prairie Region will present another event in our popular webinar forum series, entitled “Pain: Relief Is Within Reach”.

The event, which will be held on Saturday, November 3, 2018, will be broadcast live online from locations in Winnipeg, Saskatoon, and Edmonton. Join us in person at one of our host sites or watch on your own personal device from the comfort of home.

Participants will learn from our panel of health care experts about what pain is, what treatment options are available, and what each patient needs to know to make informed decisions about their own pain management.

A Q&A will follow each speaker and participants will have the opportunity to network with others living with arthritis. Lunch will also be provided to those that attend in person.

This program is offered free of charge, but pre-registration is required, as space is limited. Registration closes on October 31. Click on the registration link below to learn more and register.

Button Register

This event is made possible by the generous support of our sponsors: AbbVie, Novartis, Pfizer, and Celgene.

 

 

Easing the Pain of Kids’ Arthritis

Easing the pain of kids' arthritisThis summer, 59 eager campers from Alberta, eastern British Columbia, and western Saskatchewan attended the Arthritis Society’s 2nd annual summer camp for children with arthritis, July 9 to 13.

Now officially called Camp All in This Together, a name chosen by campers last summer, this five-day adventure for kids aged 8 to 17 with a confirmed diagnosis of Childhood Arthritis was again held at Camp Kindle. Medically supervised and located in the fresh air of the Alberta Foothills northwest of Calgary, it was the perfect setting for kids with arthritis to meet new friends and to share their stories. Our first camp was highly successful, and 28 campers returned this year for another week of fun and friendship.

Activities included a basketball game led by Geoff Sage, the youngest person in Canada to have hip replacement surgery, and yoga led by Chloe Dusser. Guest speakers Megan Langille and Kristine Erickson spent time with campers, led activities and shared their own personal experiences about living with Juvenile Arthritis.

Camp Kindle, owned and operated by the Kids Cancer Care Foundation of Alberta, has modern dorms, a large dining room and gymnasium plus a swimming pool, a ropes course, zipline, and plenty of wide open space for kids with arthritis to just be kids.


 

 

Manitoba

Pain: Relief Is Within Reach

Lorimer Moseley, PhD, of the University of South AustraliaThis November, the Arthritis Society Prairie Region will present another event in our popular webinar forum series, entitled “Pain: Relief Is Within Reach”.

The event, which will be held on Saturday, November 3, 2018, will be broadcast live online from locations in Winnipeg, Saskatoon, and Edmonton. Join us in person at one of our host sites or watch on your own personal device from the comfort of home.

Participants will learn from our panel of health care experts about what pain is, what treatment options are available, and what each patient needs to know to make informed decisions about their own pain management.

A Q&A will follow each speaker and participants will have the opportunity to network with others living with arthritis. Lunch will also be provided to those that attend in person.

This program is offered free of charge, but pre-registration is required, as space is limited. Registration closes on October 31. Click on the registration link below to learn more and register.

Register Now

This event is made possible by the generous support of our sponsors: AbbVie, Novartis, Pfizer, and Celgene.

 

 

Manitoba Family Camp: A Weekend Adventure for Families Living with Childhood Arthritis

Manitoba Family Camp: A Weekend Adventure for Families Living with Childhood ArthritisThe Arthritis Society is proud to present a FREE weekend Family Camp for families affected by Childhood Arthritis. Kids aged 5-17 with a confirmed diagnosis of Childhood Arthritis and their immediate families are eligible to attend. Hosted at Camp Manitou in Headingley, MB from October 12-14, 2018, Family Camp is an opportunity for kids with arthritis to have a memorable camping experience in a supportive environment, alongside their families.

Along with the many fun activities campers enjoy, they will meet and share the experience with other families who have a child with childhood arthritis. The staff and volunteers are sensitive to the children’s special needs, factoring them into the schedule and programs. Activities will include nature-based arts & crafts, bannock making over a fire, orienteering and fun, family-oriented games.

Camp Manitou is a Summer Camp and Year-Round Outdoor Recreation Facility operated by the Winnipeg Jets True North Foundation. The Camp Manitou property is a 28-acre oasis just outside Winnipeg. With its forests, large grass playing field, and the Assiniboine River on three sides, the property provides lots of space to enjoy nature. Camp Manitou has an exceptional and experienced program staff who offer a safe and fun outdoor experience to meet the specific needs and interests of patrons.

Further information and required forms will be emailed to you directly after you have registered. If you have any questions about your application or Camp, please contact Allison Kirkland, Education & Services Coordinator, Arthritis Society – Prairie Division, at 204-942-4892 (toll-free 1-800-321-1433) ext. 6226 or by email at [email protected].


 

Ontario

The Arthritis Society hosts Camp Cambria for its third year!

Although arthritis is widely considered an “old person’s disease,” up to 24,000 of those affected are children under 18. The intense chronic pain experienced significantly interferes with their everyday living. Every day, children impacted by childhood arthritis are faced with challenges that make the most menial of tasks, like tying shoes, a very difficult experience. These challenges can inhibit a child’s ability to have a fun and exciting childhood, and limit quality life experiences. For many children with arthritis, attending traditional camp is out of reach due to their medical needs.

This is where Camp Cambria comes in!

Camp Cambria is a residential summer camp that provides children with arthritis an opportunity to attend a camp of their own! Run by the Arthritis Society, with generous support from the official sponsor Cambria, Camp Cambria provides a safe and secure camp experience for children and teens with arthritis and other childhood rheumatic diseases, where they can increase their independence, learn new things, engage in social activities and meet new friends. In addition to a wide range of water, sports and crafting activities, the camp also offers education to help children learn to manage their arthritis more effectively. An on-site medical facility ensures that campers’ treatment programs can continue without interruption, along with any additional support campers may need.

The third annual Camp Cambria was held between August 20th – 25th, 2018 at Camp Kodiak near Parry Sound, Ontario. This year, 140 children with arthritis attended and enjoyed many exciting activities such as swimming, fishing, hiking, horseback riding and water sports!

Camp Cambria in Ontario is a staple in the Arthritis Society’s mission to provide better health outcomes for people affected by arthritis. We strive to find ways to help kids with arthritis have every opportunity to be a kid – including providing childhood arthritis camps across the country.

“It’s so fulfilling seeing these kids who face so many challenges come to camp and thrive,” says Christine Bilsky, Camp Director for the Arthritis Society, Ontario Division. “I am so proud to be a part of this amazing experience.”

To learn more information about the Arthritis Society and camps for children and teens with arthritis across the country, please visit arthritis.ca/camp.


 

Quebec

The 5th Arthritis Forum in 5 Facts

Arthritis ForumIt’s time to register to the 5th Arthritis Forum that will be held on November 10. Our team at the Arthritis Society – Quebec Division is very proud of this event, which is not only an opportunity for people battling the devastating effects of arthritis to gain knowledge on the disease, it is also a place to discuss, network and share experiences. These social connections are more precious as we know that arthritis is often associated with isolation. Join us – you are not alone with this disease!

The forum features:

  1. 26 seminars, in English and French
  2. 10 webinars in English and French
  3. 7 satellite events
  4. 4 workshops
  5. Prominent speakers, including 10 rheumatologists

Visit our new website to register: www.forumarthritis.ca

 

 

Hand in Hand activities and family day are back this fall

It is Hand in Handwith great excitement that the Arthritis Society team is preparing for the George-Russel Family Day that will be held at the Hudson Yacht Club on September 9. Children with arthritis and their families are invited to get together and connect while partaking in fun activities on this day devoted to childhood arthritis. Participants will have the chance to benefit from the generosity of the members of the yacht club who will voluntarily take everyone on a boat ride upon the majestic Lake of Two Mountains. Planned activities for the day include yacht tours, games, a barbecue and prize draws. The prizes will include paintings by Marilyn Prévost and Georges E. Russell. Participants will enjoy the presence of special guests like Dr. Claire LeBlanc, a resident of St. Lazare, and Dr. Sarah Campillo, pediatric rheumatologist.

When: Sunday, September 9, 2018
Time: From 10 a.m. to 3 p.m.
Where: Hudson Yacht Club, 10 rue du Yacht-Club, Hudson, QC, J0P 1H0
Cost: Free of charge

Registration and information: Rébécca Larose at [email protected] or call 1.800.321.1433, ext. 2438. Registration ends September 5!

In addition to Family Day, many activities are planned for you this fall! Apple-picking around Quebec City, Sherbrooke and Montreal, webcasted seminars on topics such as the demystification of arthritis and relaxation, yoga and self-massage workshops, as well as Djamboola Fitness dance sessions. Visit our online event calendar to register and to get more information! Activities are either free of charge or very affordable.

 

 

Champagne tastings for a good cause

Bouchées, champagne et réseautageThe 8th edition of the Bouchées, champagne et réseautage (Appetizers, champagne and networking) gala will be held Thursday, September 20 at 6 p.m. at the Boréalis Museum in Trois-Rivières. Chaired by Ms. Maude Duguay of the Société Immobilière Duguay (Duguay Real Estate Company), this prestigious event brings together champagne lovers, allows them to expand their network and, of course, to contribute to the funding for arthritis research. To buy tickets for the event or for more information on the evening, click here (page available in French only).

 

 

A successful 15th edition of the kids on the move camp

Kids on the Move CampWhat a dream-packed week our campers had at this 15th edition of Kids on the Move camp, which was held at Camp Massawippi between June 24th and 30th! An array of activities was planned for the children, ranging from multimedia, artistic, theatrical and musical activities to outdoor and aquatic activities (canoeing, kayaking, pontooning, swimming). The 39 children with arthritis, aged 8 to 16, were far from bored, with entertainment such as Lil John the clown magician! To wrap up the week, an incredible party was thrown on the beautiful beach.

The Kids on the Move camp, tailored to the needs of children living with arthritis, offers children a chance to enjoy an exciting camp experience just as they would in traditional camps they can otherwise not attend. By connecting with other children with arthritis, they break out of their isolation and widen their social circle. Above all, they learn to manage their disease while having fun. The campers are surrounded by a medical team composed of rheumatologists and specialized nurses, lead by Dr. Sarah Campillo, as well as massage therapists and occupational therapists. We would like to thank them all for their generous devotion!

 

 

One more way to give

One more way to giveThe Quebec massage therapists association showed great generosity through their foundation’s work. For a period of one year, the Massage Therapy Foundation will provide 200 hours of care to people suffering from choric pain caused by arthritis. The Arthritis Society will determine the occasions in which this care will be provided, but already, a team composed of eight massage therapists has brought happiness to children that attended the Kids on the Move camp this summer. We can safely bet that this partnership will be much appreciated!

Nathalie BissonNathalie Bisson was 37 years old when she was diagnosed with severe rheumatoid arthritis. Instead of paralyzing her, the disease pushes her to make her dreams come true. Over the years, Nathalie has learned not to focus on the pressure of performance, but on the celebration of all she has achieved. It is with this attitude that she founded the Pace du Bonheur movement. She now gives lectures on perseverance and performance stress management, transmits to others this inner peace she has learned to find and has created a Website that features a store carrying inspiring items. As a spokesperson for the run portion of Quebec City’s Walk for Arthritis since 2016, Nathalie donates 5% of sales made on her Pace du bonheur website to support the Arthritis Society’s cause. Thank you, Nathalie!


 

New Brunswick

Camp JoinTogether

Camp JoinTogetherThis July, the Arthritis Society held the 7th annual Camp JoinTogether for children living with arthritis. Thanks to the Arthritis Society’s donors, this year was the best year yet, having 96 campers register from across the Maritimes. As one camper, Jacqueline, put it, “Going to Camp JoinTogether is like a week-long Christmas morning. But instead of getting toys and candy, you get lots of fun, lots of adventures, a lot of new friendships and a lot of people who understand you.” We cannot wait for Camp JoinTogether 2019!

 

 

Steps with Seniors

The Arthritis Society in New Brunswick is offering a free program, funded in part by the Government of Canada’s New Horizons for Seniors program, called Steps with Seniors. This program offers people in New Brunswick with arthritis, the chance to participate in low-impact group walks led by a trained walking coach twice a week for six weeks.

Arthritis research indicates that walking on a regular schedule has been proven to help manage chronic pain and improves overall mood and mental wellness. At each walk, the coaches will share effective specially designed walking tips for people with arthritis/chronic pain. Some of these tips from healthcare professionals include: improving posture, setting mini goals, do’s and don’ts for exercising with chronic pain, and improving flexibility and strength. Group walks encourage socializing and increase motivation.

Walking groups confirmed are:

  • Rothesay Sobeys with Munch and Move program, Meet in Community Room, August 20th to October 1st ( no walk on September 3rd, Labour Day). Every Monday at 9:30am
  • Fredericton Sobeys with Munch and Move, Meet in the Community Room, September 19th to October 24th. Every Wednesday at 10:00am.
  • Riverview: Meet at the Fundy Chocolate River Station. Walk starts on Thursday Sept 20th and continues every Tuesday and Thursday until Oct 25th at 10:00am.

Training session for the Dieppe/Moncton/Riverview area Dr. Sarah Lord, Health and Wellness Coordinator for Jean Coutu, is hosting a Steps with Seniors Leadership training on Aug 29th for new walking coaches in the region.

If interested in becoming a walking coach and/or participating in one of the scheduled walking programs throughout New Brunswick, please email [email protected] or call 1.902.429.7025 ext 8233.

 

 

Jingle Bell Walk and Run for Arthritis in Support of Camp JoinTogether

Jingle Bell Walk and Run for ArthritisOn Sunday, November 25th, 2018, the Arthritis Society will be hosting the Jingle Bell Walk and Run for Arthritis in support of Camp JoinTogether. This event will raise funds to help more children with arthritis in Atlantic Canada have the unforgettable experience of camp. Participants in the Jingle Bell Walk and Run can choose between a 1km or 3km walk along the Halifax Waterfront with jingle bells to make some noise for childhood arthritis. This event will have food, fun, and festivities for the whole family at the Waterfront Warehouse, in Halifax, Nova Scotia. For those in Atlantic Canada who are not able to attend in-person, you can still participate virtually by raising funds for Camp JoinTogether in your community. So, let’s join together for Camp JoinTogether! Register today at: www.arthritis.ca/jinglebelljointogether


 

Prince Edward Island

 

Camp JoinTogether

Camp JoinTogetherThis July the Arthritis Society held the 7th annual Camp JoinTogether in the Maritimes for children with arthritis. Thanks to the Arthritis Society donors, this year was the best year yet, having 96 campers register from across the Maritimes. As one camper Jacqueline put it, “Going to Camp JoinTogether is like a week-long Christmas morning. But instead of getting toys and candy, you get lots of fun, lots of adventures, a lot of new friendships and a lot of people who understand you.” We cannot wait for Camp JoinTogether in 2019!

 

 

Steps with Seniors

The Arthritis Society PEI Division is excited to be offering a new free bi-weekly, 6-week Steps with Seniors walking program this fall. This program funded in part by the Government of Canada, combines physical activity and education for seniors in PEI living with arthritis, teaching arthritis self-management and how to safely and effectively exercise with arthritis. Steps with Seniors will meet twice a week in Rustico (starting August 28th at 6:30pm) and in Stratford (starting October 4th at 1:00pm). To register for Steps with Seniors or for more information on other walking groups please contact the Arthritis Society at 1-800-321-1433 or [email protected].

 

 

Healthy Eating with Arthritis & Steps with Seniors

PEI is offering a Healthy Eating program this fall with the Sobeys Dietitians teaching participants how healthy eating can help them feel better and manage their arthritis. Healthy Eating with Arthritis is a 6-week program covering topics like balancing meals, portion control, label reading, snacking, and participants can try new foods and get their questions answered. This program is combined with the Arthritis Society’s Steps with Seniors program, which includes information on how to self-manage arthritis and a group walk each session. This program runs twice a week in West Royalty (Mondays & Tuesdays starting September 10th at 1:00pm) and in Summerside (Tuesdays & Fridays starting September 18th at 1:00pm). For more information or to register please contact the office at 1-800-321-1433 or [email protected].

 

 

Making ‘Rheum’ for Arthritis: A Family Effort

After last year’s success, Making Rheum for Arthritis: A Family Effort will be returning to Summerside, PEI September 19th at 1:00pm. This monthly program funded by the United Way of PEI, brings together arthritis patients, caregivers, and guest speakers each month to learn about topics related to arthritis and to provide support to people affected by arthritis. Some of the topics covered will be aqua fitness and arthritis (September 19th at 1:00pm), physiotherapy (October 17th at 1:00pm), and chair yoga (November 21st at 1:00pm). This program will be taking place at the Inspire Learning Centre in Summerside. For more information or to register please contact the Arthritis Society at 1-800-321-1433 or [email protected].

 

 

Family Day

The Arthritis Society is thrilled to announce that we will be hosting our first Arthritis Family Day in PEI this November. All families with children living with juvenile arthritis are invited to attend this event. Arthritis Family Day will feature Dr. Adam Huber, Pediatric Rheumatologist at the IWK Health Centre who will be answering questions about childhood arthritis. The event will also feature fun for the whole family with activities and food for both children and parents. For more information or to pre-register, please contact the Arthritis Society at 1-800-321-1433 or [email protected].

 

 

Understanding Your Arthritis Public Forum

This year, the Arthritis Society will be hosting a free public forum at the Rodd in Charlottetown, PEI on October 4th, 2018 from 6:30pm-8:30pm. This event gives participants the opportunity to learn about arthritis services in PEI, legal rights surrounding living with a chronic illness, and small changes that people with arthritis can make to self-manage their disease. This public forum was made possible by the Law Foundation of Prince Edward Island. The Arthritis Society also thanks Easter Seals, PEI and their generous donors for their valuable contribution. For more information or to register, please contact the Arthritis Society at 1-800-321-1433 or [email protected].

 

 

Jingle Bell Walk and Run for Arthritis in Support of Camp JoinTogether

Jingle Bell Walk and Run for ArthritisOn Sunday, November 25th, 2018 in Halifax, the Arthritis Society will be hosting the Jingle Bell Walk and Run for Arthritis in support of Camp JoinTogether. This event will raise funds to help more children with arthritis in Atlantic Canada have the unforgettable experience of camp. Participants in the Jingle Bell Walk and Run can choose between a 1km or 3km walk along the Halifax Waterfront with jingle bells to make some noise for childhood arthritis. This event will have food, fun, and festivities for the whole family at the Waterfront Warehouse, 1549 Lower Water Street, Halifax. If you live in New Brunswick, Newfoundland & Labrador, Prince Edward Island, or Nova Scotia and are unable to attend, you can participate virtually by raising funds in your community. So, let’s join together for Camp JoinTogether! Register today at: www.arthritis.ca/jinglebelljointogether


 

Nova Scotia

Nova Scotian volunteer speaks at the UN

Arthritis affects as many as 24,000 children in Canada. Yet there is still a prevalent belief that arthritis only affects older populations. Nikolas Harris of Halifax is breaking down that stigma and even took his message to the United Nations.

Nikolas HarrisNikolas visited the UN in New York City to attend the 11th Session of the Conference of States Parties to the Convention on the Rights of Persons with Disabilities. He was one of three Youth Delegates chosen to represent Canada at the conference as part of the official Canadian Delegation. While there, he was able to speak about his own experience with juvenile arthritis at a panel presentation about childhood disability.

“I was able to share some of the struggles of growing up with [an] invisible disability and managing a chronic health condition … I discussed the importance of person-centered care, empowering youth as experts of their care, and the importance of accessible supports.”

Nikolas was diagnosed when he was 22 months old. Now at age 24, he is actively managing his condition while working as a social worker.

He says his time at the UN was a valuable way to learn how others around the world live with disabilities. When he wasn’t sharing his own experiences, Nikolas says he was a “sponge,” taking in the information others shared. Connecting with the international disability community was an opportunity to discover how conditions are treated across different cultures – including what Canada does well and what we can do better. Nikolas says the conference challenged him to think inwards.

“It was both exciting and overwhelming at times,” he said. “But in a good way, as a point of growth, learning, and developing.” Nikolas said he hopes those in attendance – and here at home – understand that arthritis can affect anyone at any age and the importance of connecting with others. He acknowledges there is still an “elderly stigma” surrounding arthritis, and says his discussion was a way to address that stigma head-on.

Now that is trip to the UN is over, Nikolas is ready to translate his experience into community action.

“It has definitely empowered me with a sense of what more I can do in my community and how that may impact the larger society.”

 

 

Camp JoinTogether

Camp JoinTogether"Going to Camp JoinTogether is like a week-long Christmas morning. But instead of getting toys and candy, you get lots of fun, lots of adventures, a lot of new friendships and a lot of people who understand you.” -Jacqueline.

Camp JoinTogether 2018 was the best year yet! Because of the support of the Society’s donors, 96 children from across the Maritimes registered for the Society’s 7th Camp JoinTogether. The countdown is now on for Camp JoinTogether 2019.

 

 

Steps with seniors

The Arthritis Society, Nova Scotia Division is offering a free program, funded in part by the Government of Canada’s New Horizons for Seniors Program, called Steps with Seniors. This program offers Nova Scotians with arthritis, the chance to participate in low-impact group walks led by a trained walking coach.

Arthritis research indicates that walking on a regular schedule helps manage chronic pain and improves overall mood and mental wellness. At each walk, the coaches will share effective walking tips and lead stretches designed specifically for people with arthritis or chronic pain. Some of these tips include: improving posture; setting mini goals; do’s and don’ts for exercising with chronic pain; and improving flexibility and strength. Group walks encourage socializing and increase motivation.

If interested in becoming a walking coach, the Arthritis Society has created a fun and easy process for volunteers to acquire the skills and knowledge needed to feel comfortable leading and walking with a group. Volunteers will receive free training to become walking coaches and will also be offered free CPR/Emergency First Aid training.

Walking groups confirmed are:

Bedford

  • Halifax West Liberals Seniors Group, DeWolfe Park; every Tuesday (on-going), 10:00am-11:00am
  • Northwood Bedford Campus entrance, every Friday (on-going) 10:00am-11:00am

Chester

  • Our Health Centre entrance; every Friday (on-going), 9:00am -10:00am
  • Our Health Centre entrance; starting September 18th to October 25th, Tuesdays & Fridays 9:00am-10:00am

Dartmouth

  • East Dartmouth Community Centre (indoor walk); every Wednesday and Friday (on-going), 12:00noon-1:00 pm
  • • Grahams Grove Park parking lot; August 14th – September 20th, Tuesdays & Thursdays 9:30am-11:00am
Halifax
  • Sobeys Lacewood, Community Room with Munch and Move Program; every Monday (on-going), 10:30am -12:00noon
  • • Sobeys Mumford, Community Room with Munch and Move Program; every Friday (on-going), 9:30am-10:30am
Lower Sackville
  • Sobeys First Lake, Community Room with Munch and Move Program; every Friday (on-going), 9:30am-10:30am
Musquodoboit Harbour
  • The Old School House: September 4th at 10:30am Chronic Pain Lecture followed by a walk; then starting September 6th until October 12th the walk will be Tuesdays and Thursdays,10:30am-11:30am
New Glasgow
  • Sobeys Westside Plaza, Community Room with Munch and Move Program; August 13th to September 17th, Mondays 10:30am -12:00noon,
  • • Sobeys Aberdeen, Community Room with Munch and Move Program; August 9th to September 13th, Thursdays at 9:00am -11:00am

If interested in becoming a walking coach and/or participating in one of the scheduled walking programs throughout the province, or to learn of new programs being planned, please call 1.800.321.1433 or email [email protected].

 

 

Taking Charge of Arthritis - Mark your calendar!

Saturday, November 24, 2018, the Arthritis Society, Nova Scotia Division will host an all-day symposium, Taking Charge of Arthritis at The Westin Nova Scotian Hotel, 1181 Hollis Street, Halifax. For more information or to Register call 1.800.321.1433 or email [email protected].

 

 

Virtual Everest

Climb Everest. Conquer Arthritis.

Are you ready for the ultimate test of endurance in Halifax? Participants climb Citadel Hill National Historic Site a total of 80 times, up steep terrain that simulates the elevation from sea level to summit of Mount Everest. Your efforts support the Arthritis Society’s vital programs, services, advocacy and research for the one in three Nova Scotians living with arthritis. It’s a big challenge, an important cause and a whole lot of FUN!

Are you ready to move mountains for Nova Scotians living with arthritis? Register today at www.arthritis.ca/virtualeverest.

 

 

Jingle Bell Walk and Run for Arthritis in Support of Camp JoinTogether

Jingle Bell Walk and Run for ArthritisLet’s Join Together and continue to make Camp JoinTogether possible.

The Arthritis Society fund raises year-round to send Atlantic Canadian children living with childhood arthritis to Camp JoinTogether. Help us raise funds, so as many children as possible can have a summer experience they’ll never forget. On Sunday, November 25th, 2018 the Arthritis Society will host Jingle Bell Walk and Run for Arthritis in Support of Camp JoinTogether; a morning of food, fun and festivities at the Waterfront Warehouse, 1549 Lower Water Street, Halifax. You can choose from a 1km or 3km walk along the Halifax waterfront with jingle bells to make some noise about childhood arthritis. If you are unable to attend, you can participate virtually by raising funds in your community.

Register today at: www.arthritis.ca/jinglebelljointogether.


 

Newfoundland and Labrador

Steps with Seniors

The Arthritis Society in Newfoundland has a new free program, funded in part by the Government of Canada, called Steps with Seniors. This program offers people in Newfoundland and Labrador with arthritis, the chance to do low-impact group walks led by a trained walking coach twice a week for six weeks.

There are many advantages to participating in Steps with Seniors including that, walking on a regular schedule has been proven to help manage chronic pain, and that walking improves overall mood and mental wellness. At the start of each walk, the coach will share simple and effective specially designed walking tips for people with arthritis/chronic pain. Some of these tips from healthcare professionals include: improving posture, setting mini goals, do’s and don’ts for exercising with chronic pain, and improving flexibility and strength.

There is also the opportunity for people to become walking coaches. The Arthritis Society has designed a fun and easy process for volunteers to acquire the skills and knowledge to lead and walk with a group comfortably. Volunteers will receive both free walking coach training and free CPR/Emergency First Aid training. If you are interested in becoming a walking coach, participating in Steps with Seniors, or participating in one of our many other programs throughout the province, please contact the Arthritis Society at 1.800.321.1433 or [email protected].

 

 

Upcoming Conference in St. John's

There are many exciting things happening at the Arthritis Society in Newfoundland and Labrador this Fall, like our educational forum in partnership with HealthQuest. The forum will take place in St. John’s, Newfoundland and planning is still underway, but stay tuned for details coming soon!

 

 

Jingle Bell Walk and Run for Arthritis in Support of Childhood Arthritis

Jingle Bell Walk and Run for ArthritisThe Arthritis Society’s Jingle Bell Walk and Run in support of childhood arthritis, will once again be happening this year in Newfoundland and Labrador on Sunday, November 18th, 2018. This Walk and Run will be raising funds for childhood arthritis research, programs, and initiatives in Newfoundland and Labrador. Participants in the Jingle Bell Walk and Run can choose between a 1km, 2.5km, or 5km route at Bowring Park Bungalow, St. John’s. The event will have holiday fun for the whole family with cookie decorating, ornament making, crafts, and pictures with Santa. So come dressed in your favourite holiday costume or ugly Christmas sweater and we’ll provide the jingle bells. Let’s make some noise for childhood arthritis! For more information or to register, please contact the Arthritis Society at 1.800.321.1433 or [email protected].

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